Gathering support for Shaun and Jakob’s challenge in the streets near CA HQ
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Joe is three years old and has a rare condition called Coffin-Siris syndrome, which affects several body systems physically, as well as on a developmental level. Joe is non-verbal.
Joe’s mum wrote to the charity about his dream to go to CBeebies Land & Splash Landings at Alton Towers:
“Joe adores water. He is happiest when he’s in it. He also loves CBeebies & little train rides. Joe has such limited things he enjoys, this would be amazing to have all in one place. He will be so excited and happy”!
Amber is 12 years old and lives in Cheshire. She has a genetic condition called Fragile X syndrome which causes developmental problems including learning disabilities and cognitive impairment. Amber has always dreamed of going to Winter Wonderland at Center Parcs to enjoy all the fun activities including fireworks displays and meeting Santa and his reindeer.
Lily-Clare, aged 10, has multiple respiratory conditions as well as a permanent collapsed lung & scoliosis. Lily-Clare is a keen horse rider and wrote to our charity partner about her dream.
“My dream is to ride a race horse, in front of a crowd, around a race track. Not during a race, or me racing in a race. Just by myself on a race horse”.
For our current challenge, we have made it our aim to fulfil Naomi’s dream, who lives locally to our HQ. She was diagnosed with leukaemia at the end of 2014 and had undergone intensive treatment including a stem cell transplant. This required long periods of hospitalisation which Naomi coped with amazingly well with courage and determination.
“I’ve always dreamed of going to Hawaii, ever since I was little. Mum used to tell me stories about her visit to Hawaii & how spectacular it was. I’d like to bring my little brother Oscar because he bravely donated his bone marrow to me to save my life. If I go to Hawaii I’d: Go to the observatory on Mauna Loa & see the stars, swim with dolphins, walk on top of the volcano, visit the beautiful Island of Kauai & even try to learn traditional Hawaiian dancing”.
Naomi needed £3,500 to realise this Dream and we are grateful to all those who donated and helped us to achieve that target! Really wonderful effort.